I had said there are many things about the past week I wish to write about. I'm going to start with the most difficult--what the doctors said about Georgia's heart.
First off, Georgia came through the labour and birth quite well. Her heart rate was monitored continuously and it remained stable at about 70-80 bpm throughout. Her one-minute and five-minute Apgar scores were three and eight, respectively. The first one was so low because she was very pale and had a bit of trouble breathing right off the bat. Those conditions were not necessarily due to her heart though; they may have been the result of the umbilical cord being wrapped around her neck and body (it's rather surprising that her cord was so long since my other babies had very short cords). It's very good that she improved so quickly and had a good score at five minutes.
Now about her heart... While in NICU, Georgia had an echocardiogram, ECG (electrocardiogram), and 24-hour Holter monitor. With those results, the pediatric cardiologist, Dr. Mack (in consultation with his mentor), diagnosed Georgia's condition to be third-degree or complete heart block.
Basically, while the SA node (sinus node) is conducting normally, the AV node is completely blocked; i.e., it is not sending a signal to the ventricles. Instead, the ventricles are beating at a rate that's dictated by one of the heart's back-up systems, most likely a junction below the AV node.
So what does that mean for Georgia? We really don't know at this point. We just have to wait and see what happens.
Newborn babies have a high heart rate (between 120 and 160) and it gradually decreases as the child grows. So the concern with Georgia is that her already slow heart rate may get slower. If it does, then she may need a pacemaker. They really don't know if it will decrease or not.
There's also the issue of maternal antibodies. They do think the heart block was caused by my antibodies. Those antibodies are still in Georgia's system but they'll clear out of her in about six weeks. I don't think they've seen any damage in her heart, so we hope to see an improvement after the antibodies clear, but who knows. Dr. Mack didn't say much about that.
In the meantime, Georgia will be monitored pretty closely. She'll be seeing our family doctor, a pediatrician, and the pediatric cardiologists on a regular basis. Our GP and pediatrician both have received all of the background info on Georgia's condition. She will also have another 24-hour Holter monitor in three weeks. We may also be getting some sort of home heart monitor from the hospital this week, that we could use for a couple of months. This type of monitor is set to alarm at 80 bpm, so we'll only be getting one if they can reset it to alarm at 60 bpm. According to our last NICU nurse, the alarm could "wake the dead" so we certainly don't want it set too close to her normal heart rate.
We were also instructed to check Georgia's heart rate several times a day. Thanks to Mom for lending us a stethoscope. There's no way we could check her heart rate accurately by trying to feel her pulse in her upper arm or groin area--much too elusive. If we find her heart rate at 60 or less, then we need to take her to Emergency. Plus, we always need to watch for signs of heart failure, such as pale/mottled/blue skin tone, swelling in various parts, respiration problems, lethargy, and even a worried look on her face (seriously, babies will look worried when there's something wrong; who knew?).
So, we just have to wait and see. I'd be lying if I said this doesn't scare me. It scares the hell out of me.
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